Contemporary Cultural Studies in Illness, Health and Medicine

Writing Contested IllnessExperimentation in Contemporary Women's Life Writing

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Published 31 March 2027

About this book

Examines how women’s experimental illness narratives are driving new conceptions of contested illness

  • Documents the emerging subgenre of experimental illness narratives
  • Discusses how autobiographical experimentation is changing the narrative of contested illness
  • Conducts a history of contested illness

Intervening in the gnarled lineage of gender, genre and medicine, Writing Contested Illness investigates how uncertainty, doubt and dismissal, the key features of medical contestation, are mediated and transformed in women’s experimental illness narratives. It discusses how a range of autobiographical experimentation in emerging and increasingly common subgenres like autofiction, autotheory, experimental memoir and the lyric essay, are creating productive new avenues for contested illnesses to be represented. These illnesses, which range in this book across hysteria, eating disorders, chronic fatigue syndrome, fibromyalgia and chronic Lyme disease, have been subject to constrictive medical practices, rendering the conditions illegitimate, under-studied and under-diagnosed. In observing how such narratives identify the rifts caused by medicalised contestation and identify key sites of repair within this sphere, this book argues that experimental life writing can be its own first-hand, affective and embodied source of medical knowledge.

Reviews

How do women give voice to experiences of chronic illness which trouble or elide diagnosis, confound biomedical certainties and are the subject of enduring controversy? In this brilliant first book, Chloe R. Green shows how the formal features of experimental literary life writing play a critical role in the generation of new knowledge about contested illness. As compassionate as it is razor-sharp, Writing Contested Illness will reshape our understanding of what illness narratives can be and achieve.
Table of contents

Acknowledgements
Series Editor's Preface


Introduction: Contested Illnesses and Autobiographical Experimentation
1. Illness as/and Femininity: Haunted Inheritances in the Contemporary Hysteria Memoir
2. Gut Feelings: The Empathy of Disordered Eating in Chris Kraus’s Aliens & Anorexia and Amélie Nothomb’s The Life of Hunger
3. Rewriting Relationality: Care and the Familial Bonds of Illness in Alice Hattrick’s Ill Feelings and Marianne Brooker’s Intervals
4. Fragments, Lists and White Space: Fibromyalgia and Forms of Sympathy in Amy Berkowitz’s and Sonya Huber’s Lyric Essays
5. ‘Living in Uncertainty Was My Lot’: Porochista Khakpour’s and Meghan O’Rourke’s Chronic Lyme Memoirs
Conclusion: COVID-19, Long COVID and Hope for a Sick Future

References
Index

About the author

Chloe R. Green

Chloe R. Green is a Lecturer in English at the Australian National University. She has published widely on the medical humanities, life writing, autofiction and affect theory, and was previously an Irish Research Council Postdoctoral Fellow at University College Dublin.

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