Cicely Saunders and Total Pain
Joe Wood
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Contemporary Cultural Studies in Illness, Health and Medicine
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Published 31 March 2027
Examines how women’s experimental illness narratives are driving new conceptions of contested illness
Intervening in the gnarled lineage of gender, genre and medicine, Writing Contested Illness investigates how uncertainty, doubt and dismissal, the key features of medical contestation, are mediated and transformed in women’s experimental illness narratives. It discusses how a range of autobiographical experimentation in emerging and increasingly common subgenres like autofiction, autotheory, experimental memoir and the lyric essay, are creating productive new avenues for contested illnesses to be represented. These illnesses, which range in this book across hysteria, eating disorders, chronic fatigue syndrome, fibromyalgia and chronic Lyme disease, have been subject to constrictive medical practices, rendering the conditions illegitimate, under-studied and under-diagnosed. In observing how such narratives identify the rifts caused by medicalised contestation and identify key sites of repair within this sphere, this book argues that experimental life writing can be its own first-hand, affective and embodied source of medical knowledge.
How do women give voice to experiences of chronic illness which trouble or elide diagnosis, confound biomedical certainties and are the subject of enduring controversy? In this brilliant first book, Chloe R. Green shows how the formal features of experimental literary life writing play a critical role in the generation of new knowledge about contested illness. As compassionate as it is razor-sharp, Writing Contested Illness will reshape our understanding of what illness narratives can be and achieve.
Acknowledgements
Series Editor's Preface
Introduction: Contested Illnesses and Autobiographical Experimentation
1. Illness as/and Femininity: Haunted Inheritances in the Contemporary Hysteria Memoir
2. Gut Feelings: The Empathy of Disordered Eating in Chris Kraus’s Aliens & Anorexia and Amélie Nothomb’s The Life of Hunger
3. Rewriting Relationality: Care and the Familial Bonds of Illness in Alice Hattrick’s Ill Feelings and Marianne Brooker’s Intervals
4. Fragments, Lists and White Space: Fibromyalgia and Forms of Sympathy in Amy Berkowitz’s and Sonya Huber’s Lyric Essays
5. ‘Living in Uncertainty Was My Lot’: Porochista Khakpour’s and Meghan O’Rourke’s Chronic Lyme Memoirs
Conclusion: COVID-19, Long COVID and Hope for a Sick Future
References
Index
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